2015年。阿茲海默症專題：阿茲海默症的一天36小時

Alzheimer's, The 36 Hour Day: The Complete Journey

Four years in the making, this program presents a guide to understanding and caring for patients with Alzheimer's disease by nationally acclaimed Alzheimer's expert and best-selling author of "The 36-Hour Day" Peter V. Rabins, MD, MPH.

Using family's experience with Alzheimer's disease, Dr. Rabins provides a universal framework starting with diagnosis and continuing through assisted living/long-term care and finally hospice.

The challenges and care tips presented are of great value to both family and professional caregivers.

2015年。阿茲海默症專題：阿茲海默症患者棘手行為之道

The Rabins Response to the Challenging Behaviors of Alzheimer's Disease

This DVD presents an interactive workshop with long-term care staff conducted by Dr. Peter V. Rabins addressing the care of Alzheimer's patients presenting challenging behaviors. 

Content includes discussion with nursing staff, staff interviews and actual patient-staff vignettes with Dr. Rabins. In discussing patient cases, Rabins asks nursing staff to consider the following questions:

What is the problem behavior?
Why is it a problem? Is it really a problem?
When does the behavior happen?
Where does the behavior happen? 
Who is around when it happens?
 
With information provided by the answers to these questions, Rabins helps care providers identify the triggers which have precipitated the behaviors. Once the triggers have been identified, together they develop strategies to both prevent these behaviors and minimize them if they should occur. Implementing this technique can transform seemingly difficult patients, minimizing upsetting situations for both the patient and staff.

2015年。阿茲海默症專題：葛雷絲的故事

Grace: The Alzheimer's Documentary

 

"Grace" stands out as the definitive documentation of Alzheimer's disease, both following the progression of the disease and the inspirational care giving efforts of her husband over a period of seven years. The documentary starts in the early years of the disease when Grace Kirkland is already having short term memory problems, experiencing catastrophic outbursts when frustrated, and starting to get lost in parking lots. Her husband Glenn, makes sure to involve Grace in many of the things she has always enjoyed and with his help, her love of life, shines through the disease of Alzheimer's. 

Four years later, Grace is having significant difficulties and often remains silent for days. Her rare words are greatly appreciated by her husband who has now assumed many more care giving responsibilities. Glenn, determined to keep Grace as active and independent as possible, uses cueing, and step by step guiding to involve her with dressing and eating.  
 
Three years pass and Grace no long has words. She has difficulty walking, and it's questionable if she can recognize Glenn. Weeks later, hundreds of people attend her funeral and as the choir sings "Amazing Grace," Glenn mourns the woman he has cared for with unrelenting love. Far more than a clinical study portraying the progression of dementia and the role of a caregiver, Grace inspires us to remember the meaning of unconditional love.

2015年。阿茲海默症專題：安撫阿茲海默症病患情緒感知的技巧

Nurturing the Emotional Well-Being of the Alzheimer's Patient

In this DVD filmed on-location in a long-term care facility, Dr. Rabins and nursing assistants identify strategies to incorporate emotional well-being into care for patients with Alzheimer's disease. These include: connecting person to person; entering into the world of the person with Alzheimer's disease; accepting the reality of the person with Alzheimer's disease; knowing what treats and activities are enjoyed; using physical touch to comfort and reassure; and eliminating experiences which may be stressful.  
 
With the tools provided in this DVD, staff in long-term care and assisted living, as well as family members, can improve the emotional well-being of the person with Alzheimer's disease -- providing moments and days of happiness.

2015年。阿茲海默症專題：察覺阿茲海默症病患的情感需求

Recognizing the Emotional Needs of the Person with Alzheimer's Disease

Because of difficulty with language skills, individuals with Alzheimer's disease are often unable to express their emotions. This video will help viewers discover why it is important to encourage emotional well-being and to assess the emotions of patients, especially those who have difficulty communicating. In a discussion with nursing assistants, Dr. Rabins explores the long ignored reality of the importance of the emotional well-being of the Alzheimer's patients. Nursing assistants explain why a patient's emotions are key to quality care. "If you understand their emotional needs, the rest of their care just falls into place."

 

Nursing assistants in this DVD explain that by knowing their residents they can easily tell if a person is more confused than usual, sad, frightened, or happy. They explain the importance of observing the resident's body language, facial expressions, and willingness to engage. For Alzheimer's patients, calling out, wandering, refusing to eat, and changes in sleep patterns may all be signals of emotional need. This program includes patient footage, and interactive staff discussions.

2015年。阿茲海默症專題：involving the Alzheimer patient.

The guide for providing quality of life for the Alzheimer patient : maintaining independence and involving the Alzheimer patient.

This DVD filmed on-location in a nursing home, includes a discussion with nursing assistants lead by Dr. Peter V. Rabins as well as resident vignettes showing how staff encourage independence. Content includes: the importance of finding out how much a resident can do for themselves; maximizing the independence of a person with Alzheimer's disease by guiding and cueing; and using positive reinforcement to encourage residents to do as much as possible for themselves. 

Dr. Rabins meets with several residents and the nursing assistants caring for them. In discussions with the staff member, he reviews the resident's functional capability and ways to promote function. Content includes: encouraging independence; developing individualized plans responsive both to the stage of the disease and the previous interests of the individual; using cueing and demonstration to guide the resident; avoiding activities that will be frustrating or potentially cause catastrophic reactions; and knowing when to revise plans to meet changing needs of the patient. For residents, the opportunity to maintain as much independence for as long as possible is the key to their well-being. One caregiver notes, "Once you find the door, you'll be amazed at what residents can do and what a difference it makes in their life."

2015年。阿茲海默專題：我想念我自己

我想念我自己

 

 

 

愛麗絲是一位才智過人、事業家庭有成的大學教授，正值人生顛峰時，卻被診斷出罹患了早發性的阿茲海默症。當她一步一步失去記憶，家人和同事的關係也跟著改變，愛麗絲漸漸發現失去記憶並不代表失去生命中的一切…

愛麗絲 (茱莉安摩爾 飾)任教紐約哥倫比亞大學，是享譽全球的語言學教授，她聰明獨立、對人生充滿熱情，有個同為教授且深愛她的丈夫約翰(亞歷鮑德溫 飾)與三個已長大成人的孩子，唯一煩惱只是小女兒莉蒂亞(克莉絲汀史都華 飾)放棄念大學而執意追求演員夢。看似完美的生活，卻在演講時意外失語、慢跑時喪失方向感等一連串意外下失序。神經科醫生診斷她罹患了早發性且是遺傳性PSI基因變異的阿茲海默症，震驚崩潰的愛麗絲向家人透露病情，面對即將失去引以自豪的事業與獨立生活的能力，無助的她甚至為自己的未來先行安排結局；當記憶一步步走向終點時，也是愛麗絲與莉蒂亞展開諒解之旅的起點。

「活在當下，擁抱現在」這是多麼簡單順口卻又如此困難實踐的人生哲學，事事做好B計畫的完美女教授，被基因裡的命運之神指派完成「活在當下」的功課。精於語言學的她，如何解讀這看似悲劇性的字眼：「早發性阿茲海默症」，在社交技能幾乎歸零的恐慌考驗裡，重新朗讀出愛的故事。當昨日的記憶被燒毀，明日終究無力盤算，感受眼前的溫暖才是無與倫比的美麗。《我想念我自己》是好萊塢唯一三大國際影展全制霸影后茱莉安摩爾，攻頂奧斯卡大滿貫自信之作。

《我想念我自己》改編自哈佛大學神經科學博士麗莎潔諾娃（Lisa Genova）的同名小說, 麗莎因為自己祖母罹患阿茲海默症過世而決心寫下此故事，雖然故事純屬虛構，作者卻用阿茲海默患者的角度，而不是照護者的角度來詮釋，忠實呈現了患者真實的心路歷程。小說甫一上市，立即登上紐約時報暢銷書排行榜的第五名，並在榜上盤據了四十週之久，於美國熱賣超過180萬冊，並已翻譯成25國語言版本，同時也是美國阿茲海默症協會目前唯一認可並推廣的小說。阿茲海默症於今尚是一種無法治療的疾病，其病程不可能逆轉，只能盡力使其和緩。患者會先喪失短期記憶，然後是長期記憶，最後甚至連語言、文字、空間、時間的記憶都會完全喪失，成為無法自理生活的嚴重失智者。光是2013年，全美就有500萬人，全球有3600萬人罹患阿茲海默症，因此將這部如此重要的小說搬上大銀幕，對於失智患者或家屬，甚至是社會的每一個人都意義深遠。

2015年。九~十月新片阿茲海默症專題清單

The guide for providing quality of life for the Alzheimer patient : recognizing pain.

The guide for providing quality of life for the Alzheimer patient : maintaining independence and involving the Alzheimer patient.

我想念我自己

察覺阿茲海默症患者的情感需求

安撫阿茲海默症病患情緒感知的技巧

阿茲海默症患者葛雷絲的故事

阿茲海默症患者棘手行為的應對之道

阿茲海默症的一天36小時

2015年。八月新片：The Resident’s Perspective

The Importance of Faith and Religion: The Resident's Perspective

 

For many older individuals approaching the end of life, faith and religion become more important, providing them with strength and purpose. In a series of interviews with residents living in long-term care, the vital role of belief becomes apparent as these elderly deal with the loss of their physical strength and functional capabilities as well as the loss of friends and relations who are no longer alive. 

For them, the world has changed often leaving them only the support of religion. They look forward to coming together at services, singing songs they have always known, and being comforted by familiar passages in the bible. While not all residents wish to participate in religious activities, nursing staff who see this DVD will realize the importance of making sure that those who receive comfort from their faith and religion are given every opportunity to participate in weekly services, holidays and conversations with their faith leaders.

This DVD is appropriate for all staff working in long term care, assisted living and for students training to work with the elderly.

2015年。八月新片： Negative and Abusive Responses

Preventing and Reducing Negative and Abusive Responses

Everyone who works in long term care or assisted living comes in contact with resident behaviors that could potentially precipitate negative or abusive caregiver responses. These behaviors are generally related to a medical condition and can include such things as calling out, swearing, racial slurs, striking out, grabbing or refusing necessary care. Nursing staff in this program relate their personal experiences with residents having these behaviors. They make a number of valuable suggestions to prevent and reduce negative responses.

All agree, rule number one is always remaining calm. They explain that knowing your resident will help you decide the most appropriate way to handle a verbal or physical outburst. For some residents distraction or re-direction works, for others, simply walking away and coming back several minutes later is the solution. They also discuss many other strategies including: the importance of knowing when to get help; safety issues; and the emotional cost of dealing with these behaviors. 
 
This DVD provides both ways to prevent the escalation of destructive behaviors as well as guidelines for caregivers on how to reduce negative and abusive responses should these behaviors be encountered.

This program is presented by Georgia Stevens, PhD, APRN, BC.

2015年。八月新片：Why Residents Refuse Necessary Care

Resident's Rights: Why Residents Refuse Necessary Care

When residents refuse care or make poor health choices, nursing assistants find themselves in a difficult position. At some point, all nursing assistants will be confronted with residents who refuse to be bathed, change soiled clothes, take medications, or refuse other necessary care. The challenge for the nursing assistant is to respect the resident's right to make these choices, however still make sure necessary care is provided.

In this DVD, filmed on location at a nursing home, staff identify some frequent reasons  for refusing care including:  a resident not wanting to do something at particular time of day;  resident wanting the same person to always  care for them; resident being fearful when approached by strangers; resident needing gentle coaching and reassurance; and resident having privacy issues. 

Only by understanding the reasons why care is being refused, can solutions be found. Nursing staff and the social worker offer the following positive suggestions. Always remember the resident has a right to refuse care. Never use physical force to overcome resistance to care, and never address the resident with an angry voice or punitive manner. Encourage resident with positive reinforcement and use distraction, talking about their areas of interest. If care is refused, always document the specific care refused and communicate with the team. Identify who has had success with the resident and what they are doing that makes a difference. Working as a team, it is generally possible to find ways to deliver necessary care.

2015。八月新片：strategies to overcome resistance to care

Resident's Rights: Strategies to Overcome Resistance to Care

Staff in long term care and assisted living are often faced with the dilemma of a resident refusing necessary care. Staff know residents have the right to refuse care but they also fully appreciate the importance of supporting positive health outcomes and quality of life.
 
Find out how nursing staff prevent confrontations, respect residents' rights and still deliver the necessary care. Their recommendations start with recognizing the importance of building a relationship with a resident and taking the time to find out who the resident is.  Finding out about their family and their past interests lets residents know you care about them as a person. This relationship is very likely to ensure you'll be able to provide  necessary care.  
 
If a resident refuses care, staff suggest the following: try coming back a short time later, using a soft voice and a reassuring manner explain why the care is necessary.  Some nursing assistants use humor, or  offer  some type of "bribe/reward," while others use personal conversation as a distraction. If you're not successful, ask someone who knows the resident better to help out. When a resident continues to refuse care, prioritize the importance of the care and decide if it can be provided at a later time. Always document and report specifically what care has been refused. Filmed in a long-term care facility with commentary from a nurse practitioner, LPNs, nursing assistants, and a social worker.

2015年。八月新片清單

Neglect : the most frequent abuse in long-term care.

Resident's rights : strategies to overcome resistance to care.

Resident's rights : why residents refuse care.

Preventing and reducing negative and abusive responses.

The importance of faith and religion : the resident's perspective.